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Health data fuel biomedical innovation. Data-driven patient participation—that is, patient contribution of their biospecimens, self-reported or wearable data, health record data, and other information—is a way to help advance medical research, improve care, and increase patients’ engagement with their health. However, this comes with an increased need to build public trust and update the current policy and regulatory environment surrounding the collection and use of data.
FasterCures' work explores the use of ethical and transparent data practices that preserve patient privacy while accelerating and enabling research collaboration.
FasterCures is dedicated to promoting collaboration between the public and private sectors to enhance the infrastructure for inclusive clinical research in the US. To meet this need, we are leading ENRICH-CT, a multistakeholder group comprising business, government, and nonprofit leaders.
ENRICH-CT serves as a precompetitive initiative to share best practices, support collective action on common challenges, and build an ecosystem of excellence that sustains the workforce, partnerships, resourcing, and technology needed to effectively conduct research closer to communities.
Download the ENRICH-CT One-Sheet