SVG
DNA Sequencing Data Processing Genetic Genomic Analysis
Engaging Patients in Research and Health

Practice of Patient Engagement

Overview

Ensuring that patients remain at the center of the biomedical research ecosystem is a top priority for FasterCures. Our patient engagement work examines the current state of integrating patient perspectives and input in health care and medical product development. We also explore approaches and opportunities to meaningfully engage patients in biomedical R&D activities and provide insights, considerations, and resources that can help advance the current patient engagement practices across the ecosystem. 

Resources

Vital Voices: Opportunities and Strategies for Patient Organizations to Engage CMS

The Centers for Medicare and Medicaid Services (CMS) is the agency that sets national standards for payers and value assessors. Through workshops and webinars, participants gain practical insights into CMS’s structure, key mandates, and patient resources, while learning strategies—such as coalition building, leveraging patient experience data, and navigating state policy—to elevate the patient voice in access and coverage decisions.

Approaches for Medtech Companies to Incorporate Patient Engagement Strategies

Patient engagement has been slower to evolve in the medtech space compared to the pharmaceutical sector, but more device, diagnostic, and digital health companies are beginning to meaningfully engage patients in R&D activities. To explore the opportunities for patient engagement along the total product lifecycle of medtech R&D, FasterCures’ hosted a virtual public convening delving into the value and return on investment of patient engagement in medical technology product development.

Related Reports

Related Event Sessions and Webinars

What's Trending in MedTech?
This panel will explore a range of emerging issues in medtech (medical device, diagnostics, and digital health).
Beyond Checkboxes: Elevating Diversity and Representativeness in Patient Engagement
The gold standard for obtaining patient input for biomedical research once was ensuring a representative sample of the population with the disease.
Putting Your Money Where Your Mouth Is: ROI in Patient Engagement
Many medical manufacturers perceive the value of incorporating patients’ experiences and outcomes in R&D processes as a way to align research efforts with patients’ needs.
Making the Business Case for Patient Engagement
This session will open with remarks by Kasey Altman, Founder, Kasey Altman Research Fund, followed by a panel discussion on Making the Case for Patient Engagement.
What's Next for Patient Engagement

This session will open with a Time=Lives Talk by Sandra Abrevaya and Brian Wallach, Co-Founders of I AM ALS, followed by a panel discussion on Policymaking as a Driver of Progress.

Recent efforts to engage US patients in biomedical research have been bolstered by policymakers and congressional action.