Practice of Patient Engagement
Overview
Ensuring that patients remain at the center of the biomedical research ecosystem is a top priority for FasterCures. Our patient engagement work examines the current state of integrating patient perspectives and input in health care and medical product development. We also explore approaches and opportunities to meaningfully engage patients in biomedical R&D activities and provide insights, considerations, and resources that can help advance the current patient engagement practices across the ecosystem.
Resources
Vital Voices: Opportunities and Strategies for Patient Organizations to Engage CMS
Approaches for Medtech Companies to Incorporate Patient Engagement Strategies
Related Reports
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Patient Engagement in Care Delivery: Approaches by Health-Care Providers
Patient engagement is a critical component at every stage of the health care ecosystem, from drug development to care delivery.Read Report -
Defining and Demonstrating the Value of Patient Engagement in Medtech Research and Product Development
In 2022, FasterCures published a report titled The Current Landscape of the Science of Patient Input, which examined the progress of patient engagement (PE) in biomedical research and identified ways to overcome ongoing challenges. Building...Read Report
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The Current Landscape of the Science of Patient Input
In the last decade, FasterCures and many stakeholders across the biomedical research ecosystem have driven initiatives to ensure that patients’ perspectives and input are appropriately represented across the product-development continuum...Read Report
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Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners
FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakeholders such as product developers and regulators to define and implement the “how to” of patient engagement. This series, “Advancing Models of...Read Report
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Patient-Focused Drug Development Meetings: Smart Practices from Community Leaders
FasterCures, a center of the Milken Institute, designed this guide for patient advocacy organizations that are interested in hosting, or are currently planning, an externally led patient-focused drug development (PFDD) meeting. We have...Read Report -
Patient-Centric Initiatives: Focusing for Impact
The impact of patient engagement has been demonstrated by numerous case studies for specific diseases and products, as well as a model for the return on investment. There is now a growing call for expanding beyond single examples of patient...Read ReportTC AD CGTaylor Cusher, Anna DeGarmo, and Cynthia Grossman
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Expanding the Science of Patient Input: Pain Points and Potential
Patient engagement has been called the “blockbuster drug of the 21 st century.” Studies find that the more engaged and involved patients are with their health and health care, the better the outcomes. There is now growing interest in...Read Report -
Expanding the Science of Patient Input: The Power of Language
Language matters. At a February 2016 workshop of leaders committed to expanding patient engagement hosted by FasterCures, just 22 percent felt there was broad agreement on what the term “patient-centered” means or represents. The need to...Read Report -
Patient-Perspective Value Framework (PPVF)
Skyrocketing health-care costs have driven the latest wave of health-care transformation, shifting the system from a fee-for-service model to value-based care. This shift has sparked increased efforts to determine how to measure value. For...Read ReportSkyrocketing health-care costs have driven the latest wave of health-care transformation, shifting the system from a fee-for-service model to value-based care. This shift has sparked increased efforts...
Related Event Sessions and Webinars
This session will open with a Time=Lives Talk by Sandra Abrevaya and Brian Wallach, Co-Founders of I AM ALS, followed by a panel discussion on Policymaking as a Driver of Progress.
Recent efforts to engage US patients in biomedical research have been bolstered by policymakers and congressional action.