Senior Director, FasterCures, Milken Institute Health
Kristin Schneeman is a senior director on the FasterCures team at Milken Institute Health. With the Milken Institute since 2005, her primary responsibility is FasterCures' innovation portfolio of projects and activities.
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Valerie Barton
Chief Data Strategy Officer, People-Centered Research Foundation (PCRF)
FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakeholders such as product developers and regulators to define and implement the “how to” of patient engagement. This series, “Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners,” seeks to identify effective ways for research organizations of all types, including research data networks, to partner with patient organizations that can bring patients’ perspective, participation, and data to the table.
Part I
Part I of the series offers high-level framing of patient engagement issues and provides recommendations for patient organizations, researchers, and funders.
Part II
Part II of this series is intended to provide patient organizations that fund and engage in medical research with insight into and guidance related to their role as critical partners in this ecosystem, particularly as trusted intermediaries for the collection and aggregation of patient-generated health data (PGHD).
Part III
Part III describes the patient organization ecosystem, lays out the types of PGHD that patient organizations may collect, and concludes with recommendations for researchers for effective and meaningful engagement with patients and patient organizations.
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Senior Director, Feeding Change, Milken Institute Health
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