Senior Director, FasterCures, Milken Institute Health
Kristin Schneeman is a senior director on the FasterCures team at Milken Institute Health. With the Milken Institute since 2005, her primary responsibility is FasterCures' innovation portfolio of projects and activities.
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Valerie Barton
Chief Data Strategy Officer, People-Centered Research Foundation (PCRF)
FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakeholders such as product developers and regulators to define and implement the “how to” of patient engagement. This series, “Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners,” seeks to identify effective ways for research organizations of all types, including research data networks, to partner with patient organizations that can bring patients’ perspective, participation, and data to the table.
Part I
Part I of the series offers high-level framing of patient engagement issues and provides recommendations for patient organizations, researchers, and funders.
Part II
Part II of this series is intended to provide patient organizations that fund and engage in medical research with insight into and guidance related to their role as critical partners in this ecosystem, particularly as trusted intermediaries for the collection and aggregation of patient-generated health data (PGHD).
Part III
Part III describes the patient organization ecosystem, lays out the types of PGHD that patient organizations may collect, and concludes with recommendations for researchers for effective and meaningful engagement with patients and patient organizations.
Summary Establishing and developing a data collection and management platform can be a central activity for many patient foundations that have a mission to advance biomedical R&D. Throughout the history of The Research Acceleration and...
In 2022, FasterCures published a report titled The Current Landscape of the Science of Patient Input, which examined the progress of patient engagement (PE) in biomedical research and identified ways to overcome ongoing challenges. Building...
The Honorable Diana DeGette US House of Representatives Washington, DC 20515 The Honorable Larry Bucshon, MD US House of Representatives Washington, DC 20515 Re: Request for Information on Next-Generation Cures Bill Dear Representatives...
Esther Krofah is the executive vice president of Milken Institute Health, leading FasterCures, Public Health, the Future of Aging, and Feeding Change. She has extensive experience managing efforts to unite diverse stakeholders to solve critical issues and achieve shared goals that improve patients’ lives.
In the last decade, FasterCures and many stakeholders across the biomedical research ecosystem have driven initiatives to ensure that patients’ perspectives and input are appropriately represented across the product-development continuum...
FasterCures wants to ensure that the lessons of the COVID-19 crisis are not lost once the current urgency subsides — not only for combating future infectious diseases, but for conducting every other aspect of biomedical innovation...
The impact of patient engagement has been demonstrated by numerous case studies for specific diseases and products, as well as a model for the return on investment. There is now a growing call for expanding beyond single examples of patient...
The Milken Institute’s FasterCures works to build an effective, efficient system driven by a clear vision: patient needs above all else. We are honored to welcome Alex Azar, the 24th US secretary of Health and Human Services (HHS), to the...
Michelle Tarver, MD, PhD Director, Center for Devices and Radiological Health US Food and Drug Administration Silver Spring, MD 20993 Peter Marks, MD, PhD Director, Center for Biologics Evaluation and Research US Food and Drug...
Esther Krofah is the executive vice president of Milken Institute Health, leading FasterCures, Public Health, the Future of Aging, and Feeding Change. She has extensive experience managing efforts to unite diverse stakeholders to solve critical issues and achieve shared goals that improve patients’ lives.
The FasterCures team at the Milken Institute is honored to provide its expert response to the Request for Comments on the Medicare Drug Price Negotiation Program: Draft Guidance, Implementation of Sections 1191–1198 of the Social Security...
Esther Krofah is the executive vice president of Milken Institute Health, leading FasterCures, Public Health, the Future of Aging, and Feeding Change. She has extensive experience managing efforts to unite diverse stakeholders to solve critical issues and achieve shared goals that improve patients’ lives.