Patient-Centered Care

Leveraging Data-Driven Patient Participation to Accelerate Medical Research

14 May 2020

The fuel for biomedical innovation is data. Data-driven patient participation — or patient contribution of their biospecimens, self-reported or wearable data, health record data, and other information — has emerged as a tool that may help...

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Ep. 24: The Right Thing, with Children’s National Hospital’s Kurt Newman

“We've been around for 150 years and we want to be around for another 150 years. So we'll figure out a way to deal with the finances. Right now we're just focused on doing the right thing for these kids and families.” Putting patients first...

Podcast

The Right Thing, with Children’s National Hospital’s Kurt Newman

Read more about Ep. 24: The Right Thing, with Children’s National Hospital’s Kurt Newman

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Back to Basics: HIV/AIDS Advocacy as a Model for Catalyzing Change

1 Jun 2011

This report highlights how people affected by HIV rallied together and created an HIV advocacy movement that demanded change and got results. The milestones of this movement include transforming the research system through patient-driven...

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Does it Work for Patients? A Multi-Step Approach to Defining Performance and Measuring Progress Across the Biomedical Ecosystem

21 Feb 2020

Quick Links Step One: Discover Existing Research » Step Two: Articulate Ideals» Step Three: Identify Measures » As patients, we often evaluate our interactions with the “system” of healthcare innovation and delivery with a simple question:...

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Power of Ideas

A Professional Perspective on How to Build a Meaningful Life in the 21st Century

20 Nov 2019

"People pay the doctor for his trouble; for his kindness they still remain in his debt." ―Seneca (4 BC–65 AD) Reflecting on my own 30-year career in health care, I have tried to focus on what changes during this time have made significant...

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Bobby Prasad

Fellow, Royal College of Physicians

Power of Ideas

Bringing People Together to Solve Complex Problems

20 Nov 2019

Sir Ernest Shackleton’s thwarted but ultimately heroic Arctic Endurance expedition, BP’s oil spill in the Gulf of Mexico, and the San Jose copper mine collapse that trapped 33 Chilean miners underground. These are some of the challenges at...

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Mark Pollock

Explorer, Speaker, and Collaboration Catalyst

Report

Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners

19 Oct 2020

FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakeholders such as product developers and regulators to define and implement the “how to” of patient engagement. This series, “Advancing Models of...

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Kristin Schneeman and Valerie Barton

19 Oct 2020

Power of Ideas

Why Taking Chances in Developing Rare Disease Medicines Is Worth the Risk

13 Oct 2019

Of the 7,000 known rare diseases in the world, only 5 percent have treatments. This means that a large majority of those who live with rare diseases are left without meaningful options—and some, without hope. Our goal is to change those...

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Timothy P. Walbert

Chairman, President, and CEO, Horizon Therapeutics

Four doctors and nurses talking to each other

Power of Ideas

A Prescription for Brain Disease Research

13 Oct 2019

The population is aging, and so are its brains. Neurodegenerative diseases are impacting more people—those who are diagnosed and their loved ones—bringing with them higher costs for all. The number of people with Parkinson’s disease, for...

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Todd Sherer

CEO, Michael J. Fox Foundation for Parkinson’s Research

Power of Ideas

Empowering Patient-Centricity for the Future of Health

13 Oct 2019

As the United States continues to address the ongoing opioid crisis, policy makers, health-care providers, corporate stakeholders, and patients are having difficulty balancing opioid misuse prevention strategies with widespread calls to...

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Anita Gupta

Johns Hopkins School of Medicine, Anesthesiology & Critical Care

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