Data Collection and Privacy

Through significant advancements in biomedical innovation, new promising gene and cell therapy treatments may be the key to unlocking the cure to debilitating genetic, oncologic, and other diseases that were once deemed incurable. The first...

The United States—as of June 2020—has more reported cases of COVID-19 than any other country in the world, despite having many of the same resources as other countries that curbed the pandemic more successfully. COVID-19 has highlighted the...

The fuel for biomedical innovation is data. Data-driven patient participation — or patient contribution of their biospecimens, self-reported or wearable data, health record data, and other information — has emerged as a tool that may help...

As governments and communities fight to slow the spread of the novel SARS-CoV-2 virus and related COVID-19 disease, necessary responses such as mandatory social distancing and business closures have strained industries and economies. The...

What data assets are patient organizations creating, and how are they adding value to the work of partners trying to accelerate therapeutic development for patients? This was the topic of a January 31st FasterCures webinar, featuring the...

FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakeholders such as product developers and regulators to define and implement the “how to” of patient engagement. This series, “Advancing Models of...

Treating and curing disease is among the most aspirational and impactful goals of scientific research. Chronic diseases such as diabetes, heart disease, and depression affect 40 percent of the US population and account for more than 75...