Kevin Wake is the President of the Uriel E. Owens Sickle Cell Disease Association of the Midwest, a CBO in Kansas City, KS. He is also Chairman of University Health’s Patient and Family Advisory Council, Sentrics’ Patient and Family Advisory Council, is involved with advocacy through the Rare Disease Legislative Advocates, and has worked on several committees including the National Health Council’s Value Initiative Work Group and ASH’s Learning Community Design Workgroup. He has a bachelor’s degree in Human Biology from the University of Kansas and worked in pharmaceutical sales and management for 23 years before taking an early retirement due to health complications from his sickle cell disease. Kevin received his master’s degree in Healthcare Informatics from Walden University and a Community Health Worker certification from the SCDAA. Kevin lives in Kansas City, MO with his husband and three rescue dogs.