Nina Frost

Nina Frost is co-founder and president of RARE Hope, a nonprofit advancing a patient-partnered drug development model to accelerate treatments across rare diseases. Following her daughter’s diagnosis with Alternating Hemiplegia of Childhood (AHC), an ultra-rare neurological condition, she built a research program spanning 50 leading institutions and oversaw capital raises totaling more than $40 million for AHC. The program has advanced therapeutics across multiple technologies, including breakthroughs in gene editing.

She champions rare disease as a catalyst for broader therapeutic innovation, developing modular approaches to therapeutic development that can support treatments across diseases and serve populations far beyond rare disease.

Please note that speakers provide their own biographies and headshots. Biographies represent the role of the person at the time of their engagement and are not independently verified by the Milken Institute.