Future of Health Summit 2026

Shared Solutions for Rare Disease (Invite only)

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Initiatives by foundations and companies focused on accelerating progress combatting rare diseases have proliferated in recent years. However, the number of efforts can make it challenging to keep track of them and work with them to maximum effect. The field can feel as though there is no center of gravity, or perhaps too many centers of gravity. How might we help organizations working in rare diseases both go fast and go far most efficiently? This private session will seek to identify the shared solutions emerging across the rare disease landscape that could make it easier for organizations to navigate available resources, build on existing efforts, and ultimately help the community translate those efforts into greater impact. 

    Moderator

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    Kristin Schneeman

    Senior Director, FasterCures, Milken Institute

    Speakers

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    Michael Hund

    Founder and CEO, Rare Ventures; CEO, EB Research Partnership
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    Amy Rick

    Director, Rare Disease Innovation Hub, FDA
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    Joni Rutter

    Director, National Center for Advancing Translational Sciences, National Institutes of Health
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    Tania Simoncelli

    Vice President, Translational Impact and Engagement, Biohub