Expanding the Science of Patient Input: Building Smarter Patient Registries

Decision-makers in research, industry, policy and health-care settings are actively seeking robust sources of patient data to inform patient-centered practices, policies and outputs. Scientific rigor throughout this process is of paramount importance to ensure solid outcomes. This report, as a part of our Patients Count: The Science of Patient Input program, is aimed at establishing rigorous methods and reliable practices for understanding and incorporating patient needs into the process of developing, regulating and delivering new therapies.

Updated/Published June 6, 2019