Data from and about patients is essential in order to advance biomedical research, but its collection and dissemination can be a significant investment of time and resources for patient organizations that choose to be the intermediary. Patient groups and their research collaborators have to determine what data is needed, how to ethically and securely collect it, how it will be managed, what can be shared, and how these efforts will be funded and sustained long-term. On this webinar, we will hear from leaders within the patient organization community on models they have employed to collect and share a range of types of patient data for research, as well as how they have thought about and addressed issues of guiding principles, governance, and sustainability. This webinar is part of a series from The Research Acceleration and Innovation Network (TRAIN) from FasterCures.
How are nonprofit organizations leveraging venture philanthropy to accelerate the development of treatments and cures? As part of The Research Acceleration and Innovation Network (TRAIN) webinar series, FasterCures takes a deeper dive into...
How are patient organizations taking on the challenge of diversity, equity, and inclusion within biomedical research to create better health outcomes for all patient populations, especially those historically excluded from research and...
Rajiv Ahuja, associate director at the Milken Institute, focusing on the future of aging, moderates this Advances in Science webinar with featured guest Richard J. Hodes, M.D., Director of the National Institute on Aging (NIA) at the...
Rajiv Ahuja is a director for the MI Health Future of Aging team where he focuses on aging policies and programs that support healthy longevity. Ahuja’s mission is to create lasting change through research, advocacy, and the formation of impact coalitions.
Data from and about patients is essential to advance biomedical research and development, but its collection and dissemination can be a significant investment of time and resources for patient organizations that choose to be the...
For too long, the need for national infrastructure solutions has been limited to conversations of roads, bridges and stalemates in Congress. The COVID-19 pandemic has altered the financial circumstances of many communities just as high...
How can patient organizations hoping to leverage the resources of industry researchers attract their support and establish formal industry partnerships? How can partnerships with industry partners ensure intellectual property considerations...
The COVID-19 pandemic has accelerated job displacement and unemployment trends—in California and across the country—precipitated by advancements in technology and automation. Although these disruptive forces impacting the workforce are not...
How can nonprofit organizations develop and implement a venture philanthropy investment strategy? As part of The Research Acceleration and Innovation Network (TRAIN) webinar series, FasterCures collaborated with MI Philanthropy to take a...