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Neurofibromatosis Type 1 - A Giving Smarter Guide

With no effective therapies and no cure, Neurofibromatosis Type 1 (NF1) is a genetic disease that can cause a broad range of abnormalities all throughout the body. A hallmark feature of the disease is the growth of tumors on nerves. Depending on their location in the body, the tumors can compromise essential functions such as vision or can result in physical disfigurement. NF1 can also cause cognitive disability, skeletal deformities, and cardiovascular malfunction. In the US, at the time of this report, there were roughly 100,000 individuals living with the disease.

As there are no effective therapies to reverse disease symptoms or to prevent new ones from arising, and since there is no cure for NF1, the Milken Institute Center for Strategic Philanthropy has developed this Giving Smarter Guide for NF1 to help patients, supporters, and other stakeholders understand the state of the science and make informed decisions when directing their philanthropic investments.


ARTWORK: Jeffrey Owen Hanson | Artist • Philanthropist • Entrepreneur | ©2016 Jeffrey Owen Hanson, LLC