Patients are the source, active or passive, of most of the data driving discovery and innovation in biomedical R&D and improvements in care. Many of us have relatively easy and centralized access to our financial data, but few of us can say the same about our health data. Countless efforts have been made to address this issue, including the very recent federal Cures Act Final Rule, which requires that patients be able to electronically access all their records at no cost. What is still standing in our way? Only when patients have easier access to their data, more control over its use, and trust in the intermediaries can true transformation occur in the health data ecosystem. 

Moderator

Deven McGraw

Lead, Data Stewardship and Data Sharing, Invitae

Speakers

Elise Berliner

Global Senior Principal of Real World Evidence Strategy, Cerner Enviza

Harlan Krumholz

Co-Founder, Hugo Health; Harold H. Hines, Jr. Professor of Medicine and Director, Center for Outcomes Research and Evaluation, Yale University School of Medicine

Peter Levin

Co-Founder and CEO, Amida

Anna McCollister

Independent Consultant, Patient Engagement and Data Use, Access and Governance

Steve Posnack

Deputy National Coordinator for Health Information Technology, US Department of Health and Human Services