Participating Organizations
A Foundation Building Strength
Accelerated Cure Project for Multiple Sclerosis
Action Against Age-Related Macular Degeneration
Addario Lung Cancer Medical Institute
Additional Ventures
Adenoid Cystic Carcinoma Research Foundation
Adult Polyglucosan Body Disease Research Foundation (APBDRF)
AKU Society
ALD Connect
Alliance for Aging Research
Alliance to Cure Cavernous Malformation
Alliance for Lupus Research (ALR)
Alpha-1 Foundation
ALS Therapy Development Institute
Alzheimer's Association
Alzheimer's Drug Discovery Foundation
American Brain Foundation
American Heart Association
AMRF: Dr. Miriam and Sheldon G. Andelson Medical Research Foundation
Amyloidosis Research Consortium, Inc.
ARRE Foundation
Association for Creatine Deficiencies
Association for Frontotemporal Degeneration
Association of Medical Research Charities
Asthma and Allergy Foundation of America
Autism Speaks
Autoimmune Registry
Barth Syndrome Foundation
BCM Families Foundation
Ben & Catherine Ivy Foundation
Beyond Batten Disease Foundation
Beyond Celiac
Bill and Melinda Gates Medical Research Institute
Blood Cancer United
Breakthrough T1D
CACNA1A Foundation
Cancer Research Institute
Cancer Vaccine Coalition
Castleman Disease Collaborative Network
Celiac Disease Foundation
Charcot-Marie Tooth Association
Charley's Fund
Chelsea's Hope Lafora Children Research Fund
Children's Tumor Foundation
Cholangiocarcinoma Foundation
Chordoma Foundation
CLOVES Syndrome Community
CMT Research Foundation
Community Liver Alliance
Congenital Hyperinsulinism International
COPD Foundation
Creaky Joints/Global Healthy Living Foundation
Crohn's & Colitis Foundation of America
CSNK2A1 FOUNDATION
Cure Alzheimer's Fund
Cure CMD
CURE Epilepsy
Cure HHT
Cure LBSL
Cure SMA
Cure VCP Disease, Inc.
cureCADASIL Association
CureDuchenne
CureGRIN Foundation
CureSearch for Children's Cancer
CureSHANK
Cystic Fibrosis Foundation
Damon Runyon Cancer Research Foundation
Debbie’s Dream Foundation
DDX3X Foundation
Desmoid Tumor Research Foundation
EB Research Partnership
EHE Foundation
Emily's Entourage
Epilepsy Foundation
Eyes on the Future
Facioscapulohumeral Muscular Dystrophy (FSHD) Society
Fight Colorectal Cancer (CRC)
Focused Ultrasound Foundation
Follicular Lymphoma Foundation
Food Allergy Fund
Food Allergy Research & Education
Food Allergy Science Initiative (FASI)
Foundation Fighting Blindness
Foundation for a Better World
Foundation for Prader-Willi Research
Foundation for Sarcoidosis Research
Friedreich's Ataxia Research Alliance (FARA)
Friends of Cancer Research
Genetic Alliance
Global Lyme Alliance
Global Parents for Eczema Research
Glut1 Deficiency Foundation
Go2 Foundation for Lung Cancer
Graham Boeckh Foundation
Hereditary Neuropathy Foundation
Hermansky-Pudlak Syndrome Network
Hide and Seek Foundation
Hydrocephalus Association
I AM ALS
INADcure Foundation
INNODIA
International AIDS Vaccine Initiative
International Pemphigus Pemphigoid Foundation
International Rett Syndrome Foundation
Jonah's Just Begun
KAT6A Foundation
KCNT1 Epilepsy Foundation
Lennox-Gastaut Syndrome Foundation
Lewy Body Dementia Association
LGMD2I Research Fund
Life Raft Group
Lifespan Research Institute
Lipedema Foundation
LouLou Foundation
Lung Cancer Research Foundation
LUNGevity
Lymphangiomatosis & Gorham’s Disease Alliance
Lymphatic Education and Research Network
Lymphoma Research Foundation
Mayer Foundation
Medicines for Malaria Venture
Melanoma Research Alliance
MEPAN Foundation
Michael J. Fox Foundation for Parkinson's Research
Misophonia Research Fund
Mission: Cure
MPN Research Foundation
Multiple Myeloma Research Foundation
Muscular Dystrophy Association
Myelin Repair Foundation
Myeloma UK
Myhre Syndrome Foundation
Myotonic Dystrophy Foundation
National Ataxia Foundation
National Brain Tumor Society
National MS Society
National PKU Alliance
National Psoriasis Foundation
National Tay-Sachs & Allied Diseases Association
NEC Society
NephCure Kidney International
New York Stem Cell Foundation
Oligo Nation
One Mind
Ontario Brain Institute
Ovarian Cancer Research Alliance
PACS1 Syndrome Research Foundation
Pancreatic Cancer Action Network
Pankind – Australian Pancreatic Cancer Foundation
Parent Project Muscular Dystrophy
Parkinson's Action Network
Parkinson's UK
Patient Led Research Collaborative (PLRC)
PCD Foundation
Phelan-McDermid Syndrome Foundation
Progeria Research Foundation
Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network
Project 8p
Propionic Acidemia Foundation
Prostate Cancer Foundation
PSC Partners Seeking a Cure
PSC Partners Seeking a Cure Canada
PTEN Foundation
Rainwater Charitable Foundation
Rare Cancer Research Foundation
Rare Genomics Institute
Raymond A. Wood Foundation
Recurrent Respiratory Papillomatosis Foundation
Rett Syndrome Research Trust
Rick Hansen Institute
Roivant Social Ventures Inc.
RUNX1 Research Program
Sarcoma Alliance for Research through Collaboration (SARC)
Scleroderma Research Foundation
SCN2A Foundation
SENS Research Foundation
Shwachman-Diamond Syndrome Alliance Inc.
SLC6A1 Connect
Smith-Kingsmore Syndrome Foundation
Spina Bifida Association
Solve ME/CFS Initiative
Stand Up To Cancer
Susan G. Komen
Syngap Research Fund
T1D Exchange
TANGO2 Research Foundation
Tatton Brown Rahman Syndrome Community
Team Telomere
TESS Research Foundation
The Champ Foundation
The FamilieSCN2A Foundation
The LAM Foundation
The Leona M. & Harry B. Helmsley Charitable Trust
The Snyder-Robinson Foundation
The Stiff Person Syndrome Research Foundation
The TBCK Foundation
The Yaya Foundation for 4H Leukodystrophy
Tower Cancer Research Foundation
Translational Genomics Research Institute
TSC Alliance
Undiagnosed Diseases Network Foundation
United Porphyrias Association
USAgainstAlzheimer's
Usher 1F Collaborative
v-ATPase Alliance
VascularCures
VHL Alliance
YWHAG Research Foundation