The COVID-19 pandemic laid bare many of the long-standing health inequities in our society, which&nb
sp;affect a wide range of quality-of-life outcomes and risks.,
Through continued advocacy and collaboration with all stakeholders in the rare disease ecosystem, change will come.
, First, we need to shorten the diagnostic odyssey for rare disease patients. On average, it takes almost five years to receive a rare disease diagnosis, a journey that often involves multiple doctors, specialists, and misdiagnoses along the way.
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Nov 30, 2022