Industry and patient organizations can work together to streamline the process of acquiring and incorporating patient input in biomedical research. Patient organizations already drawing on limited resources to fulfill a variety of functions in research, education, and advocacy are further burdened by multiple, duplicative demands for patient data. Product sponsors are increasing the ways they engage patients in R&D processes, putting additional demands on patient organizations and communities. Product sponsors have an opportunity to partner with patient organizations in a systematic, efficient way, enabling the patient community to anticipate sponsors' needs for patient input early in the research process. Patient partners can thus help build capacity and the requisite knowledge base to address sponsors' demands, and shape partnerships to identify the right patient input for biomedical research. In this session patient organizations, product sponsors, and other key R&D stakeholders will meet to discuss the challenges stakeholder groups confront in research-partnership coordination. They will explore solutions to improve and streamline partnerships for patient engagement in future research collaborations.  

Moderator

Susan Winckler

CEO, Reagan-Udall Foundation for the Food and Drug Administration

Speakers

Annette Bakker

President, Children's Tumor Foundation

Marc Hurlbert

CEO, Melanoma Research Alliance

Christa Kerkorian

Vice President, Patient Advocacy, Day One Bio

Amy Miller

President, PhRMA Foundation