Partnering for Patients Forum 2021

Part 1: A Time=Lives Talk with Savvy Cooperative CEO Jen Horonjeff | Part 2: Where Are We and Where We Are Headed with Patient Engagement in Research?

This session will begin with Jen Horonjeff, Founder and CEO, Savvy Cooperative sharing her journey as a patient and as a professional who brings patient insights to the table to improve health innovations.

In the last decade, patient engagement in medical research emerged as a priority in the biomedical research ecosystem. Much progress has been made, with better integration of patients, data, and perspectives into biomedical R&D, and the expansion of the production and utilization of patient health data. COVID-19, along with social justice and equity movements, is transforming how biomedical R&D is conducted. But how are these trends shaping patient engagement? How are research partners ensuring representative study populations as the research landscape is shifting? Innovations are acknowledged, but what persistent challenges must be addressed? This discussion will highlight how patient engagement has evolved as panelists review initiatives currently shaping the field and emerging innovations influence patient engagement. Comparing advances in expanding diversity, equity, and inclusion for minority representation in R&D, they will predict likely patient engagement trends.

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