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Advancing Models of Patient Engagement: Patient Organizations as Research and Data Partners
FasterCures, alongside other patient-focused advocacy organizations, has long worked with stakeholders such ...
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Supporting Wellness: Initial Findings from a Survey of Lived Experience and Research Priorities of Depression and Bipolar
In 2018, the Milken Institute Center for Strategic Philanthropy and the Depression and Bipolar Support Alliance...
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Next Generation Prevention - A Giving Smarter Guide
Precision health focuses on improving overall health and preventing disease, rather than treating disease. Usin...
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Misophonia - A Giving Smarter Guide
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Misophonia is a condition in which specific sensory sensations, such as a particular sound, le...
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Alzheimer's Disease - A Giving Smarter Guide
Alzheimer’s disease is increasingly in the spotlight after a number of high-profile clinical trial failures—an ...
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Targeting Tau — Our Hope to Solving the Dementia Crisis
In our systems-based review of the biomedical landscape supporting research of a cellular protein called tau—a ...
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Patient-Reported Outcomes: Design with the End in Mind
“What outcomes matter to patients?”
This question is asked at nearly every meeting in biomedical R&D and h...
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Kidney Failure - A Giving Smarter Guide
This Giving Smarter Guide is the culmination of a year-long effort to identify strategic philanthropic opportun...
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Lipedema - A Giving Smarter Guide
A chronic condition that occurs almost exclusively in women, lipedema manifests as symmetrical buildup of painf...
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Expanding the Science of Patient Input: The Power of Language
Language matters. At a February 2016 workshop of leaders committed to expanding patient engagement hosted by Fa...
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Epilepsy - A Giving Smarter Guide
At the time of this report, approximately 30 to 40 percent of epilepsy patients were treatment resistant. The m...
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Inflammatory Bowel Disease - A Giving Smarter Guide
Inflammatory bowel disease (IBD) is a collection of diseases including Crohn’s Disease and Ulcerative Colitis, ...
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Neurofibromatosis Type 1 - A Giving Smarter Guide
With no effective therapies and no cure, Neurofibromatosis Type 1 (NF1) is a genetic disease that can cause a b...
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Bladder Cancer - A Giving Smarter Guide
More than 500,000 people in the US suffer from bladder cancer. At the time of this report, it was the fifth mos...
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Chronic Myelomonocytic Leukemia - A Giving Smarter Guide
Poor treatment options. No Cure. Patients and families affected by chronic myelomonocytic leukemia (CMML) face ...
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Parkinson's Disease - A Giving Smarter Guide
More than 1 million American lives are affected by Parkinson’s Disease (PD), a chronic, neurodegenerative movem...
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Small Cell Lung Cancer - A Giving Smarter Guide
Lung cancer has been one of the deadliest cancers in the United States. There are a number of challenges and un...
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Alzheimer's Disease: A Giving Smarter Guide to Accelerate Development of New Therapies
The need is staggering. Alzheimer's disease is the sixth leading cause of death in the United States and curren...
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Hedging Pipeline Risk in Pharma: FDA Swaps and Annuities
The cost of capital to conduct medical R&D is high because investors must be compensated with significant r...
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GBM: Giving Smarter
Glioblastoma Multiforme (GBM) is an aggressive malignant brain tumor involving glial cells of the brain. At the...