abstract
Future of Health Summit 2023

Putting Your Money Where Your Mouth Is: ROI in Patient Engagement

-

Many medical manufacturers perceive the value of incorporating patients’ experiences and outcomes in R&D processes as a way to align research efforts with patients’ needs. To ensure that appropriate frameworks and metrics are available for such patient-focused R&D, manufacturers have developed internally facing and externally facing metrics to quantify the impact of patient engagement (PE) and have devised tools to calculate appropriate renumeration for patients’ R&D participation. Among pharma researchers, collaborative industries, and investors, interest is emerging as to how manufacturers’ ESG goals can align with PE, and how ESG metrics could be used to quantify the impact of investment dollars and PE-related metrics. This discussion will explore the perspectives of biotech and pharma researchers, their research collaborators, and investors on the perceived value of PE efforts, approaches to quantify the value of such efforts, and the utility of emerging R&D frameworks.

    Moderator

    Image

    Cyndi Grossman

    Head of Realworld Research Networks, Biogen

    Speakers

    Image

    Nicholas Brooke

    Executive Director, Patient Focused Medicines Development, The Synergist
    Image

    Patricia Furlong

    President and CEO, Parent Project Muscular Dystrophy
    Image

    Joep Muijrers

    General Partner, Public Investments, Venture and Growth, Gilde Healthcare
    Image

    Neena Patil

    Executive Vice President and Chief Legal Officer, Jazz Pharmaceuticals
    Image

    Eric Racine

    Vice President and US Country Head, Public Affairs and Patient Advocacy, Sanofi