This toolkit includes resources from the Vital Voices Workshop: Opportunities for Patient Organizations to Engage CMS, as well as CMS resources and additional materials. The Milken Institute is grateful to Merck for its support of the Institute’s independent work to strengthen patient engagement with CMS.
Tools You Can Use
Workshop Resources:
CMS Resources:
- Medicare Basics | Parts of Medicare
- Medicaid Advisory Committees & Beneficiary Advisory Councils
- Public Comments | CMS
- OHEI Stakeholder Engagement | CMS
- Medicare Coverage - General Information | CMS
- CMS Organizational Chart | CMS
- Legislative-Mandates-Supplemental-Material
- Medicare Drug Price Negotiation | CMS
Additional Resources:
- 21st Century Cures Act | FDA
- How patient advocates can engage with CMS - Bio.News
- Engaging Consumers in Medicaid Program Design: Strategies from the States - PMC
- Engaging Patients in Value-Based Payment - Partnership to Improve Patient Care
- National Health Council: Medicaid Resources
- ICER: Patient Engagement Resources
- Little Hercules Foundation: Rare Access & Coverage Education
- Coalitions: MapRX, ITEM Coalition, and EACH/PIC.